Monday, December 7, 2015

Stepping Back in Time

That's what it feels like every time we have to travel back to Houston.

We've been home for a few weeks now and things seem more normal, with some major adjustments, of course. But, nonetheless, definitely more normal.

Actually, it feels beyond normal. It feels comfortable. It feels safe.
That's what home should feel like.
The minute we walk into the house, I feel peace, especially during this season. Nothing like Christmas candles burning while watching Christmas movies from the warm, cozy recliner.

Then, Monday rolls around.

We make the long trek back to Houston.
We'll be up at 5:00 am for that 3 1/2-hour drive there, and who knows how long back. Have y'all been driving in Houston lately? The traffic is ridiculous and unpredictable. Going five miles can take an hour at any given time on any given day. So, after a few hours at the hospital and then making the drive back, we are pooped.

It's definitely surreal stepping into the elevator at Texas Children's Hospital. La Petite Belle puts her hepa-filtered mask back on and we head up to the eighth floor, scrub up, and enter the BMT unit. Did we really spend a month here? Did we really spend four months in Houston? Did we really go through this? Did this really happen to us?
So many memories.
So many tears.
So much pain.
So many lonely nights.
So many moments I don't ever want to relive.
So many things I don't want La Petite Belle to ever relive.

However, we travel to Houston prepared. I make sure we always pack an overnight bag because you just never know what the appointment will hold for La Petite Belle and for us. Of course, I always expect the best out of each visit because I know God's got this. He's in charge and in control. I leave my worries and concerns in His hands because I know He's working out the best for my girl and for our family.

Today, more labs will be drawn. More results to be waited on. More decisions to be made.

But, what makes the long day and visit bearable is knowing, we will come home.
Home is the greatest place on earth, no matter where it is.

Thank you for continuing to pray for us, specifically for our girl ... that the donor T-cells would finally take over, that her cells would be completely gone, that her counts would continue to rise, that her health would remain good, and she would be protected from any infection.

God is good and we are trusting Him as the good Father He says He is. He never changes. Always good. Always a Healer. Always working for our best.

If you would like to financially support Katie's (aka La Petite Belle) journey to healing, you can find more information here:  All funds go to cover medical bills and expenses.