Yesterday, we had an unplanned appointment with an adolescent gynecologist here at Texas Children's Hospital. The fact that Katie (aka La Petite Belle) is a teenage girl going through this process makes things a little more tricky due to menstrual cycles. With her condition, this type of bleeding needs to be stopped for a time due to the anemia and low platelets. She needs to keep every drop of blood. The doctor in Lafayette had her on pills for this, but most pills of this sort contain iron (which actually can grow cancer cells). So, yesterday she got a shot which actually will stop her bleeding for three months and put her into a menopausal state. Sounds crazy, but this will help to preserve her ovaries. A lot of transplant patients go into ovarian failure and we want to do everything we can to stop that from happening.
I had to explain to my daughter what that might mean. This didn't seem to affect her too much as she stated that there are so many other options for children rather than having them naturally. She really doesn't seem to worry much about long-term stuff at the moment, just short-term. We are believing and trusting God to protect her from ovarian failure and we are doing all we can medically to prevent it too.
We have our last scheduled appointment tomorrow before admittance day on Sunday. She will get a general check-up and labs done to check her counts again. Depending on her counts, she may also be getting platelets.
She and I have been here in Houston on our own this week, staying in the apartment so that we can be available for anything that may come up like the appointment did today. We're having some good quality time together and just trying to enjoy this freedom before the long hospital stay. Just last night, my girl said, "Mama, have I told you lately that you're a good mama?" That did my heart good. I'm continuing to help her to keep a positive outlook on what's to come. We're praying daily together, and trusting and believing for God's best. He is faithful.
If you would like to financially support Katie's (aka La Petite Belle) journey to healing, you can find more information here: www.gofundme.com/Katieg. All funds go to cover medical bills and expenses. Thank you for your prayers and support!